AutismUp is a 501(c)3 autism organization in Rochester and the surrounding areas. Founded in 2004, by a small group of parents of children with Autism Spectrum Disorder (ASD), the mission is to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life.
With a person-centered approach to community integration, they help children and young adults with an Autism Spectrum Disorder reach their full potential and live as independently as possible. The support programs, services, and treatment plans are tailored to each person’s specific needs.
The Autism Council of Rochester
@ The Pieter’s Family Life Center
1025 Commons Way
Rochester, New York 14623
(585) 487-3500 (Receptionist)
(585) 413-1681 (Direct Office Number)
The mission is to make it easier for families to locate, obtain, and use the community resources available to their special needs children in the Rochester, New York area so that these children will be able to live happy, healthy, and productive lives.
Mailing address: PO Box 16471 Rochester, NY 14616
Email available through the website directly
EquiCenter is a premier accredited center for therapeutic equestrian activities. They offer both horseback riding and non-riding horsemanship and horticulture programs. The programs are offered for children with disabilities and/or health challenges, such as ADHD, Tourette Syndrome, Autism Spectrum Disorders, Developmental Delay, Intellectual Disability, Epilepsy, Hypotonia, Multiple Sclerosis, Post Traumatic Stress, Spinal Cord Injuries, Traumatic Brain Injury, Stroke, and Visual Impairment.
3247 Rush Mendon Rd.
Honeoye Falls, NY 14472
Office Telephone: 585-624-7777
The Family Autism Center in Rochester, NY is home to Camp Puzzle Peace, a grassroots non-profit organization created by a collaboration of educators and parents. Their mission is to provide traditional family experiences for families in Monroe County dealing with Autism Spectrum Disorder and other developmental delays. They provide skill-building opportunities to families and children that promote independence, healthy active lifestyles, networking and greater opportunities for families to participate in their community. The staff consists of educational and community professionals who have extensive experience working with children on the Autism Spectrum and other developmental delays, particularly those with significant communication and behavioral difficulties.
Location: 1150 University Avenue Suite #8, Building 5
The Arc of Monroe County has been providing a variety of programs and service to over 1,700 people with intellectual and/or developmental disabilities and their families in the Rochester Community for over 60 years.
The Arc of Monroe’s Community Resource Connections is a free service for people with intellectual or developmental disabilities, including Autism, living in Monroe County. The Community Resource Specialist can help individuals and families with a variety of support and services including OPWDD Eligibility, Medicaid Enrollment, and Immediate Assistance with Basic Needs like food, housing, healthcare, transportation, legal supports, and safety concerns. To contact the Community Resource Specialist please call (585) 271-0660 ext. 2581.
The Kirch Center offers state of the art diagnostic evaluation for children suspected of having an Autism Spectrum Disorder (ASD)
The center provides:
- Ongoing specialty care for children with ASD, addressing common health and behavioral concerns
- Parent –child intervention, teaching parents to be their child’s best teacher
- Information and Referral services, helping families find resources
- Programs to support families of children newly diagnosed with ASD– monthly meetings to help families navigate the services their child needs after diagnosis
The Infant/Toddler Developmental Program provides developmental and autism specific screening to young children at risk for developmental disabilities due to prematurity and other health conditions.
Crisis Intervention Program
The Crisis Intervention Program services to individuals with ASD living in Monroe County with significant behavioral difficulties
To provide comprehensive care, other pediatric subspecialties collaborated with include: Sleep Medicine, Neurology, Gastroenterology, Speech-Language Pathology, PT/OT.
Contact Phone Number: (585) 275-2986
The Rochester site of the Autism Treatment Network (ATN) is directed by Drs. Susan Hyman and Tristram Smith. This network is funded by Autism Speaks and is the nation’s first network of hospitals and physicians dedicated to bridging gaps between science and practice to improve treatment for individuals with Autism. The Autism Treatment Network is directly involved in studying the medical issues associated with autism. Through the ATN, children receive comprehensive medical care from physicians who are at the forefront of efforts to address the medical issues that arise with Autism.
Golisano Children’s Hospital
601 Elmwood Avenue
Rochester, NY 14642
Telephone: (585) 275-7701
CDC’s “Learn the Signs. Act Early.” program aims to improve early identification of children with autism and other developmental disabilities so children and families can get the services and support they need.
The program is made up of three components: Health Education Campaign, Act Early Initiative, plus research and evaluation. Information is available for families, providers, and early childhood educators.
Autism Speaks has grown since 2005 into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Tool kits are available for families to address a variety of concerns including: the first 100 days after an autism-spectrum disorder diagnosis, school community tool kit, transition tool kits, dental tool kit, and tips for successful haircuts. http://www.autismspeaks.org/family-services/tool-kits
They also have a statewide directory of resources http://www.autismspeaks.org/resource-guide/state/NY