Parents of special needs children need also need support. This page lists all of the city resources for parents with all types of children with special needs.
The Arc of Monroe has been providing a variety of programs and service to over 1,700 people with intellectual and/or developmental disabilities and their families in the Rochester Community for over 60 years.
The Arc of Monroe’s Community Resource Connections is a free service for people with intellectual or developmental disabilities, including Autism, living in Monroe County. The Community Resource Specialist can help individuals and families with a variety of support and services including OPWDD Eligibility, Medicaid Enrollment, and Immediate Assistance with Basic Needs like food, housing, healthcare, transportation, legal supports, and safety concerns. To contact the Community Resource Specialist please call (585) 271-0660 ext. 2581.
Heritage Christian Services offers Children’s Health Home Care Management for Medicaid eligible children, ages birth to 21, with two or more medical diagnoses, HIV/AIDS, Serious Emotional Disturbance, or Complex Trauma diagnoses. This support provides children and families with on-going intensive case management, care coordination and health promotion, individual and family support and referrals to community and social support services. Care Managers provide a key point of contact to manage all of your child’s current services and collaborate with all medical providers, as well as assistance with accessing new services. We provide comprehensive and compassionate care planning to address all areas of need in order for children to stay healthy and happy.
Heritage Christian Services is a contracted provider of services for Children’s Health Home of Upstate New York (CHHUNY) and Oishei Healthy Kids, serving in these counties: Erie, Genesee, Monroe, Niagara, Ontario, Livingston, Wayne. For additional information about Health Home services:
Finger Lakes Region: Children’s Health Home of Upstate New York (CHHUNY)
Western New York Region: Oishei Healthy Kids
Health Home Care Management for Children: For more: click here to email or call (585) 340-2058 in Rochester or (716) 252-5602 in Buffalo
Person Centered Services is a Care Coordination Organization committed to providing individuals with intellectual and developmental disabilities with the services and support they need to live a healthy, fulfilling life.
Person Centered Services is happy to help you or someone you know enroll for care coordination. Everyone’s first step is calling Customer Service Department at 1-888-977-7930 or emailing email@example.com. If you don’t yet have approval for Medicaid or OPWDD services, they can help with that, too!
For more information check out the: Fact Sheet
The Program Goals are to:
- Encourage Parent Child bond and interaction
- Prevent Child Abuse and Neglect
- Educate parents (Brain development, developmental milestones, etc.)
- Improve birth outcomes
- Medical care and immunization compliance
- Increase School readiness
- Pregnant women or mother’s with a child under the age of 3 months.
- Parents can be any age, any pregnancy.
- It is NOT income based.
- Live in Monroe County
- Anyone can refer (even a parent can) Call Letitcia Randolph at 325-6101 ext. 202 or firstname.lastname@example.org
Mission: “TAPSS partners with teens as they discover the possibilities for their futures as individuals, and/or parents, nurturing life skills and self-efficacy in the context of trusting and safe relationships.”
Description: TAPSS provides home-based, comprehensive and intensive supportive counseling and case management for any young parent (male or female, individually and as couples) who resides in Monroe County, is pregnant or parenting, and is under 22 years old. The services are highly individualized and provided in a relationship-based, trauma-informed and culturally responsive manner that highlights a partnership between the staff and the teen parent (s). Weekly support groups and periodic special group events including zoo trips, college tours, picnics, and holiday celebrations are an optional component.
TAPSS supports the teen parent family by offering services directed toward the teen parent’s personal development and goals, the teen parent/child relationship and the child’s health and developmental needs. Services that focus on the teen parent may include counseling and case management support with relationships, housing, finances, child care, education and employment, self-efficacy and personal goal setting. Services focusing on the parent-child relationship may include parent-child play activities and counseling with a focus on attachment as well as information and support to promote a full understanding of the relationship between child development and parenting strategies. Services directed to the child may include developmental screening, general health screening, and parent-child play/interaction experiences. Referrals often center on basic needs, child care, domestic violence, mental health counseling, early intervention, education and employment, housing and medical services.
How to Refer
Referrals can be made easily! Just call and the Program Supervisor will take the information right over the phone, or send a referral form to be completed and returned. If we are unable to provide the service for any reason, we will help figure out an alternative resource and support connection to that resource. Please contact Megan Rundle at 325-6101 ext. 204 or MRundle@spcc-roch.org.
Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions.
Parent to Parent of NYS is where families of individuals with special needs and the professionals who serve them can meet and share information. They’ve walked the walk and are here to help other families:
- Support – They offer parents/caregivers the opportunity to connect one-to-one with a parent/caregiver of an individual with the same or similar disability or special health care need – someone who has “been there.”
- Information & Referral – They help families locate the information and services they need
- Trainings – Workshop are available on Understanding Medicaid Service Coordination, Record Keeping and Using a Health Care Notebook, and various other topics.
Address: Finger Lakes Office
Att: Jacqui Liebman c/o Finger Lakes DDSO, 620 Westfall Road, Rochester, NY 14620
Phone: (585) 461-8856
This is a nonprofit agency founded on the belief that everyone should enjoy the same health, economic, and social opportunities no matter their social circumstances. The Community Place serves residents of Northeast Rochester. They are a leading neighborhood-based community center, offering a wide range of social, developmental, and educational programs delivered throughout the northeast sector of the city of Rochester, NY and throughout the greater Rochester area.
Full day Universal Pre-Kindergarten is offered for children ages 4 and 5 from 8:30 to 3:00. Breakfast, lunch, and a snack are provided to all students, and transportation is available. For more information please call: Suheily Nieves, Manager of Early Childhood Services: 585-336-4697 ext 143 or Andrea Cain, VP of Programs: 585-327-7200 ext 179.
For additional information on any of our Early Childhood programs and services please contact us at 585-288-0021.
The Carter Street Community Center, a joint project of the City of Rochester and The Community Place of Greater Rochester, offers recreation opportunities for children ages 6 through 18, including arts and crafts, supervised computer lab, a game room, indoor and outdoor basketball (10-15 year-old and 14-18 year-old), and flag football. It’s an opportunity for children to have fun and make new friends in a safe, supervised environment. Programing takes place after school and during the summer. For more information about Youth Services please contact the Manager of Programs at 585-372-7200 ext. 118.
The Community Learning Center at the Community Place of Greater Rochester offers tutoring at the Parcells Avenue Center Monday, Tuesday, Thursday, and Friday from 2:15 to 6:30 and Wednesdays from 1:15 to 5:30. In addition to help with homework, reading clubs, leadership development, physical education, and field trips are offered. Over the summer recess, the Community Summer Learning Center is open weekdays for children ages 5-13 (parents must register starting in April or May).
The Youth Employment Program at the Community Place of Greater Rochester offers classroom learning and on-the-job training for youth ages 14 and older during the summer months. Interested youths must register between April and June for the 6-week program beginning in July.
The Learning Center is a site for youth ages 17 to 25 focused on assisting students in getting their High School Equivalency Diploma (GED). Additional classes include, vocational training, health education, life skills, and economic literacy. Tests of Adult Basic Education (TABE) are administered routinely. Classes are in two sessions; mornings (9:00 am – 12:00 pm) and afternoons (1:00 pm – 4:00 pm) and begin in September, November, February, and May.
Enrollment is year-round, and applications are always accepted. In order to enroll you must complete an application, have a New York State Identification Card (Driver’s licenses, non-driver’s ID, and learner’s permit. The temporary ID is good only for enrollment). There is a mandatory 3-day Orientation which includes TABE testing. For more information on the Learning Center please contact the Manager of Adult Education and Workforce Development at 585-454-7530.
Drug prevention and problem gambling. Includes psycho-educational groups designed to help youth develop self-control and communication skills, counseling, and/or brief intervention for youth ages 12 to 20 with early stages of alcohol or drug use problem without dependence.
For adolescents who require a higher level of care, referral and support services are provided. The prevention program is located at 145 Parsells Ave. Program hours are Monday–Friday 8:30am-4:30pm. If you wish to schedule an appointment or presentation, please call 585-288-0021 to speak to a counselor, or contact Carmen Wiriyagale, Manager of Prevention Services at 585-288-0021 ext. 222.
Family Services assists individuals and families with the basic needs: food, clothing, shelter, and health. This includes food, rent or mortgage assistance, bus passes, prescriptions and personal hygiene items. Eligibility: must live in zipcodes 14605 (partial), 14607, 14609, 14610 (partial), and 14621; household income of 18% poverty level or less; and need. If eligibility is not met, referrals to emergency services and family stabilization network agency in the area will be made. For additional information please contact CPGR’s Family Service Unit at 585-288-0021.
The Homeless Project Program offers services to individuals and families who have been homeless or “at risk” of becoming homeless. For additional information please contact the Family Service Unit at 585-288-0021.
Life Management Solutions consist of a 12-week culturally sensitive program to strengthen the individual, youth and family unit. Offers workshops and case management. The programming is designed for families in crisis – helps parents/grandparents and anyone who has guardianship of children or youth build a strong family unit. For additional information please contact (585) 288-0021.
The Disability Services division of the Community Place of Greater Rochester offers service coordination for individuals with developmental disabilities and families with children with developmental disabilities. Service coordination helps individuals and their families navigate the many services offered to individuals with special needs. Evening, weekday respite is available for people with disabilities up to the age of 21; weekend overnight respite is available for people with disabilities up to the age of 25. For additional information, please contact the Director of Disability Services at 585-336-4697.
57 Central Park, Rochester, NY 14605
Phone: (585) 327-7200
Fax: (585) 546-8839
145 Parsells Avenue, Rochester, NY 14609
Phone: (585) 288-0021
Fax: (585) 288-8662
500 Carter Street, Rochester, NY 14621
Phone: (585) 336-4697
Fax: (585) 336-6704
The Mental Health Association provides support and advocacy for families who have children and teens with emotional or behavioral challenges. Free transportation and free respite care for children during support group meetings are also offered. Other services include advocates assisting with school issues including Committee on Special Education (CSE meetings), barriers to services, and advocacy with individual service providers, referral to a wide range of services, information about new services, changes to education law, and budget changes which might affect the family , coping strategies which can help parents and families to handle stress in the home more effectively, and parenting classes using promising practice models.
In addition to services for families, the Mental Health Association offers teen support group run by their peers. No prior diagnosis of a mental health condition is needed to participate in the teen support group. Family Support Services may be reached at: 585-325-3145, ext. 131 or check out their website for more information.
Address: 320 N. Goodman St., Rochester, NY 14624
Phone: (585) 325-3145
Fax: (585) 325-3188
Hillside Family of Agencies (HFA) is a leading provider of child welfare, mental health, youth development, juvenile justice, adoption, special education, safety net and developmental disabilities services to children and families across Central and Western New York and Maryland. HFA is family focused, providing a myriad of services in community, school-based, residential settings serving children and young adults (from birth to age 26) and families with special needs such as mental health, behavioral, educational, or developmental challenges. Unique programs are designed for runaway/homeless teens and families or individuals looking for adoption support or to put a child up for adoption.
The Hillside Integration Center – 24 hours a day, 7 days a week, provides direct access to all services, youth and parent support, crisis counseling, and is the general Hillside “help desk.” American Sign Language (limited), Spanish, and access to all language services are available at (585) 256-7500.
Address: 1183 Monroe Ave, Rochester, NY 14620
Hillside Children’s Center is a family and children services organization that provides child welfare, mental health, youth development, juvenile justice, special education, developmental disabilities, and family development services across Central and Western New York to children ages birth to 21 years and their families.
The Family Resource Centers of Crestwood Children’s Center is an organization that works to foster the development of young children and inspire the growth of parents as their child’s most valuable teacher. Among other services for families, the Family Resource Centers of Crestwood offer toddler and preschool early childhood education sessions and a pre-kindergarten program.
The Family Place: 426 Lyell Ave, 14606 719-2000
Peter Castle Family Resource Center: 555 Avenue D, 14621 467-8130
Southwest Family Resource Center: 89 Genesee St, 14611 436-0370
Phone: (585) 436-0370 x301
Fax: (585) 436-0482
The Mount Hope Family Center is a nationally recognized institute that has pioneered a community-supported, complete family approach to treatment and prevention. Mt. Hope Preventive Programs provide resources parents and children need to build strong, healthy family and peer relationships. Children and families serviced at the Center have faced difficult circumstances, such as violence, maltreatment, loss, trauma, poverty, and drug and alcohol abuse. Additionally, services are provided for children who are currently in foster care and those who are at risk for foster care placement. The Center provides Child-Parent Psychotherapy Program (CPP), Interpersonal Psychotherapy for Depression (IPT), Child Therapy, PATHS Club After School Program, Summer Camp Program, Parenting Skills Group, and Building Healthy Children.
Address: 187 Edinburgh Street, Rochester, New York 14608
Phone: (585) 275-2991
Fax: (585) 454-2972
Building Healthy Children (BHC) is a collaborative between Mt. Hope Family Center, The Society for the Protection and Care of Children, Strong Pediatrics, and Strong Social Work serving teen mothers and their children. BHC is a primary preventive program that combines four evidence-based practices (i.e. Parents as Teachers, the Incredible Years, Interpersonal Psychotherapy, and Child-Parent Psychotherapy). The long-term goal of the program is to decrease the number of families entering the child welfare system through Child Protective Services.
Phone: (585) 275-2991 ×213
Fax: (585) 454-2972
LCFC offers non-profit daycare for children 6 weeks old to 10 years old and Universal Pre-K program through the Rochester city School District. LCFC also offers onsite speech, hearing and vision evaluations and services and Early Intervention referrals. LCFC serves the Charlotte area of Rochester.
The Coffee Connection is a retail shop and non-profit corporation that serves as a pre-employment training center for women in recovery from substance abuse. It has become part of the solution to the chronic unemployment, poverty, abuse and displacement that women in recovery suffer. Individual who receive services at this agency include women in recovery from substance abuse with the need to move from ‘welfare to work,’ but who may have many difficulties in doing so including lack of training, being in recovery from drug and alcohol addiction, child care problems, domestic violence issues, lack of transportation, and homelessness. The women at Coffee Connection learn skills such as customer service, cash balancing, and coffee making, as well as soft skills conflict resolution, establishing boundaries with coworkers, and better forms of communication.
Parenting Village fosters the healthy development of children and families in the Rochester area by offering connection and support for expecting, new, and experienced parents. At Parenting Village, you will find excellent programming that is connected to meeting the unique needs of families in our area—families like yours! You will make meaningful and lasting connections to other parents, and to the many parenting-related resources in our community. Please explore our website, including more detailed information on our programs and local resources.
“The Advocacy Center and LDA Life and Learning Services were founded by people who wanted better opportunities for their loved ones with disabilities. Now together as Starbridge, we provide a unique and valuable combination of services and advocacy for people with disabilities and their circles of support.
Starbridge is uniquely positioned to facilitate education, community living, employment, and community inclusion for people with disabilities. We work side by side with you, partners in identifying opportunities and seeing possibilities for success.
Mission: To partner with people who have disabilities, their families, and others who support them, to realize fulfilling possibilities in education, employment, health, and community living; and to transform to include everyone.”
Phone: (585) 546-1700
Address: 1650 South Avenue Rochester, NY 14620
“Best Buddieshasstrong programs in New York that enrich the lives of youth and adults with and without intellectual and developmental disabilities (IDD). To date, Best Buddies is represented on 88 middle school, high school and college campuses across and has matched 62 adults with IDD in one-to-one friendships in the Citizens programs.”
Rochester, New York Office
1000 Elmwood Avenue,
Rochester, NY 14620
Program Manager, School Friendship – Luke Massey
Development Coordinator – Lindsay Jewett
Child and Family Resources is dedicated to providing affordable, accessible programs that enhance and support the education of parents, caregivers, and child care providers, as well as encourage the highest quality of care and positive learning experiences for young children in Ontario, Seneca, & Yates Counties.
Child Care Referral Hotline: Toll Free: 1-(800) 881-5786
Hours: Monday – Friday 9:00am – 4:30pm at multiple locations
At GiGi’s Playhouse, all ages are welcome, from pre-natal to adults. The positive and uplifting environment of GiGi’s Playhouse Rochester will empower those with Down syndrome and their families to reach their highest potential. GiGi’s Playhouse’s custom, research-based curriculum works towards advancing literacy, math skills, gross and fine motor skills, improving low muscle tone, building self-esteem, preparing for the workforce and more while fostering acceptance, awareness and networking resources for parents, siblings and the community. All programs are FREE of charge: cost will not be a barrier to achievement!
Address: 372 N Goodman Street Rochester, NY 14607
Phone: (585) 563-7487