March 20, 2013

Autism Resources

Autism support Rochester

Autism Up

AutismUp is a 501(c)3 autism organization in Rochester and the surrounding areas. Founded in 2004, by a small group of parents of children with Autism Spectrum Disorder (ASD), the mission is to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life.

Address: 180 Linden Oaks Drive
Rochester, NY 14625
Telephone: (585) 248-9011

The Autism Council of Rochester

With a person-centered approach to community integration, they help children and young adults with an Autism Spectrum Disorder reach their full potential and live as independently as possible. The support programs, services, and treatment plans are tailored to each person’s specific needs.

The Autism Council of Rochester
@ The Pieter’s Family Life Center
1025 Commons Way
Rochester, New York 14623
(585) 487-3500 (Receptionist)
(585) 413-1681 (Direct Office Number)


EquiCenter is a premier accredited center for therapeutic equestrian activities.   They offer both horseback riding and non-riding horsemanship and horticulture programs.  The programs are offered for children with disabilities and/or health challenges, such as ADHD, Tourette Syndrome, Autism Spectrum Disorders, Developmental Delay, Intellectual Disability, Epilepsy, Hypotonia, Multiple Sclerosis, Post Traumatic Stress, Spinal Cord Injuries, Traumatic Brain Injury, Stroke, and Visual Impairment.

Contact Info:
3247 Rush Mendon Rd.
Honeoye Falls, NY 14472  
Office Telephone: 585-624-7777
Fax: 585-624-7772  

Or follow EquiCenter on Facebook or Twitter @EquiCenterNY

The Family Autism Center

The Family Autism Center in Rochester, NY is home to Camp Puzzle Peace, a grassroots non-profit organization created by a collaboration of educators and parents. Their mission is to provide traditional family experiences for families in Monroe County dealing with Autism Spectrum Disorder and other developmental delays. They provide skill-building opportunities to families and children that promote independence, healthy active lifestyles, networking and greater opportunities for families to participate in their community. The staff consists of educational and community professionals who have extensive experience working with children on the Autism Spectrum and other developmental delays, particularly those with significant communication and behavioral difficulties.

Location: 1150 University Avenue Suite #8, Building 5


Developmental & Behavioral Pediatrics – Kirch Developmental Center

The Levine Autism Clinic offers state of the art diagnostic evaluation for children suspected of having an Autism Spectrum Disorder (ASD)

The center provides:

  • Ongoing specialty care for children with ASD, addressing common health and behavioral concerns
  • Parent –child intervention, teaching parents to be their child’s best teacher
  • Information and Referral services, helping families find resources
  • Programs to support families of children newly diagnosed with ASD– monthly meetings to help families navigate the services their child needs after diagnosis

Infant/Toddler Program

The Infant/Toddler Developmental Program provides developmental and autism specific screening to young children at risk for developmental disabilities due to prematurity and other health conditions.

Crisis Intervention Program

The Crisis Intervention Program services to individuals with ASD living in Monroe County with significant behavioral difficulties

To provide comprehensive care, other pediatric subspecialties collaborated with include: Sleep Medicine, Neurology, Gastroenterology, Speech-Language Pathology, PT/OT.


Levine Autism Clinic:
Contact Phone Number: (585) 275-2986

Autism Treatment Network

The Rochester site of the Autism Treatment Network (ATN) is directed by Drs. Susan Hyman and Tristram Smith. This network is funded by Autism Speaks and is the nation’s first network of hospitals and physicians dedicated to bridging gaps between science and practice to improve treatment for individuals with Autism. The Autism Treatment Network is directly involved in studying the medical issues associated with autism. Through the ATN, children receive comprehensive medical care from physicians who are at the forefront of efforts to address the medical issues that arise with Autism.
Golisano Children’s Hospital
601 Elmwood Avenue
Rochester, NY 14642
Telephone: (585) 275-7701

CDC – Learn the Signs of Autism, Act Early

CDC’s “Learn the Signs. Act Early.” program aims to improve early identification of children with autism and other developmental disabilities so children and families can get the services and support they need.

The program is made up of three components: Health Education Campaign, Act Early Initiative, plus research and evaluation. Information is available for families, providers, and early childhood educators.


Autism Speaks

Autism Speaks has grown since 2005 into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.

Tool kits are available for families to address a variety of concerns including: the first 100 days after an autism-spectrum disorder diagnosis, school community tool kit, transition tool kits, dental tool kit, and tips for successful haircuts.

They also have a statewide directory of resources:


Autism Learning Partners

Autism Learning Partners provides in-home ABA therapy services to individuals with autism in the Rochester area as well as Western New York. Autism Learning Partners prides themselves in providing evidence-based practices that ensure progress for individuals with communication, adaptive behavior, daily living skills, and social skill deficits. Through the supervision of a licensed behavior analyst, each individual’s family is incorporated into treatment so that clients make continued progress over time.

Telephone: 855-295-3276
Address: 2025 Penfield Rd
Penfield, NY 14526

Arc Of Monroe

The Arc of Monroe is now offering autism testing for adults and children at their Article 16 Clinic. Dr. Susan Chlebowski, NYS Licensed Psychiatrist, and Jennifer Parks, Clinical Assessment Specialist, will implement the testing on-site at the clinic by appointment. Both Arc of Monroe staff completed training with the Autism Diagnostic Observation Schedule, 2nd edition (ADOS-2). The ADOS-2 is used to assess and diagnose autism spectrum disorders across age, developmental level, and language skills.
Testing is only for those seeking eligibility through the Office for People with Developmental Disabilities (OPWDD). People with questions about eligibility should call Jane Stamler, Arc of Monroe’s Community Resource Specialist, at 585-271-0660 x2581. If you have obtained eligibility for autism testing you may make an appointment with the Arc of Monroe’s Article 16 Clinic at 585-271-0661.
Phone: 271-0661


Print Friendly, PDF & Email

Leave a Reply